Fibromyalgia forum for patients

Have you been recently diagnosed with fibromyalgia? Are you a longtime sufferer searching for answers? This blog is for you. This blog contains information on the diagnosis of fibromyalgia, discussions on alternative treatments, as well as the up and coming research in the field of fibromyalgia treatment.

5 Responses to “Fibromyalgia forum for patients”

  1. Margaret Kunc says:

    I am very discouraged. I have had fibromyalgia for 18 years and no one has offered to help me. My regular doctor saw that the fibromyalgia caused me to be insulin resistant and he wanted to put me on diabetic medecine, not admitting it was my disease. I have been to an endocrinologist and a rheumatologist and have had numerous painful tests only to finally be put on a dosage of metformin that made me very sick. My final diagnosis? Fibromyalgia and adrenal fatigue and no one again can do anything for me. The only saving grace is through my pushing I am on DHEA which has made my life bearable. I want someone to help me with the adrenal fatigue so my sugar levels will drop and everyone will leave me alone with the diabetic medecine. I must point out that my pancreas and liver are in excellent shape. Will anyone help me or guide me to the proper source for my adrenal fatigue?

  2. JERRY SPENCER says:

    I KNOW SEVERAL PEOPLE SUFFERING WITH FIBRO, ONE OF THEM BEING MY SISTER…ALL OF THEM BEING WOMEN…I HAVE NEVER BEEN DIAGNOSED WITH FIBRO, BUT THESE WOMEN BELIEVE THAT I HAVE FIBRO…I DON’T KNOW OF ANY MEN THAT HAVE FIBRO…I AM MALE AND WONDER IF MEN ARE NOT LIKELY TO HAVE FIBRO…I HAVE BEEN TOLD THAT ANYONE CAN HAVE FIBRO BUT I DON’T REALLY KNOW THE SYMTOMS.

  3. drmstrauchman says:

    Fibromyalgia can be a diagnosis of both men and women. It is not gender specific. It has a multitude of symptoms including generalized body aches, muscle/joint pain, and fatigue. A person that feels that they may have fibromyalgia should have an evaluation to ensure that they do indeed have fibromyalgia, not another pathology that mimics the disease. This can include endocrine disorders, adrenal fatigue syndrome, and bowel disruption (including bacterial dysbiosis).

  4. Pam says:

    Two doctor’s have told me I have fibromyalgia, but three said I do not. I do not have the 11 pain points of fibromyalgia, but I do have many of the symptoms such as memory loss, had EBV, metal taste in my mouth, inability to exercise and achey joints. I do have low estrogen and thyroid levels. I am frustrated and confused. I started human growth hormone shots and my symptoms got worse. I am not sure what to do or try next. Very frustrated.

  5. drmstrauchman says:

    Pam,

    I’m not sure what you’ve tried to this point other than the HGH shots, but if your hormone levels are out of balance, that could account for some of your symptoms. Also, newer research is suggesting that people with fibromyalgia-type symptoms have heavy metal toxicity. If you were to see me, I would likely test you for both potential issues, the hormones and the heavy metals.

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